"Let it roll, move on with life, enjoy the days that you feel good and FAMILY FIRST

Dr Kahn just called a few minutes ago. Don't you love it when your Dr. starts the conversation with "We need to have a serious talk" Like all talks with Dr's aren't pretty serious all the time. Basically my scan was totally black...This is a bummer. Dr Kahn says we could still possibly be fooled and the iodine might do something, but from her past experiences, she feels that my stupid cancer cells do not absorb the radioactive iodine anymore.

New plan is to keep my system very loaded with suppression thyroid medication (Aunt Carol, they want my TSH below 0.1, all the time)  This is an effort to slow the cancer growth as much as they can.  Labs will be checked every 3 months, hopefully my "cancer cell numbers" which is the Thyroglobulin antibodies will drop a little or at least stay the same.  The good thing about this situation is that I do not have to do the low iodine diet anymore. I am now eligible for a special medication called Thyrogen, which allows me to stay on my meds if I need any scans or special labwork.  Still kind of unsure how this med works but it means that I won't have to do the whole month of no meds deal. 

I have labwork and see surgeon and Dr. Kahn in June.  If my cancer levels are the same, we just keep watching.  If they go up, then they will try to find the cancer with a PET scan, if it is big enough to see, they will take it out surgically and treat the area with another kind of medication.  Dr Kahn did not tell me what "other kind" of medication it would be.  But I have done some home work on this and it probably means radiation or chemo, kinda depends on where they find it in my body.

Ya know, this has been a weirdly stressful day.  Even though we were home by 2 or 2:30.  But I think I feel more drained than I have all this week.  I am headed for a hot shower, a cup of sweet cappucino (cause I can taste it a little), then an early night.  I did have a few minutes of panic feeling earlier but now I am back to my mantra "Let it roll, move on with life, enjoy the days that you feel good and FAMILY FIRST!"